Still no answers as to a cause. Swelling has gotten a little worse, so as a precaution they are intubating her through her nose to ensure she has a stable airway. Treating the swelling with steroids to try to get it under control.

Bless her heart. When a child hurts the parents also hurt. Prayers for a speedy diagnosis and healing

Best wishes for your daughter Gomer and hope they can find the cause and keep this from happening again.

Finally got a potential answer:

"Veno Lymphatic Malformation of the Tongue"

According to the doctor, the only potentially life threatening part of it is losing an airway, so they went ahead and did a nasal intubation and it went smoothly.

As far as treatment, it is relatively simple and straightforward - medicine for mild/moderate cases and minor surgery as a worst case. An MRI will confirm that this is the culprit, but the doctor is pretty confident that's what it is. MRI will most likely come monday, then treatment from there.

Praying brother! Have they mentioned anything about it possibly being an autoimmune response?

The autoimmune thing was discussed but the Rheumatologists pretty much ruled that out. They are "pretty certain" it's the Veno Lymphatic Malformation deal, and said the MRI will say for sure, just won't be able to et it until probably Monday.

Still praying. God Bless.

Prayers for your little one.

Prayers sent

Sent

Prayers for your daughters speedy recovery.

Prayers for y’all Gomer.
So they’re gonna leave her nasally intubated until Monday because they can’t do an mri until then? Id be in the dr.’s ear so fast on that he’d take her up and do it himself. That’s total bull crap. It makes me want to come raise immortal hell for you. That place claims to be world renown for patient treatment/care and is a level one trauma center. No way in hell should they leave her intubated that long when they could run her up there and do it. I’d be asking some questions.

Prayer sent Gomer!

I’m a pretty good WebMD/Mayo Clinic internet doctor and I never heard of this. I’ll have to google it. Praying for comfort and an easy, effective treatment for y’all.

Been there a couple times with mine and the last one i wasnt impressed my 5yr old had 30 stictches in forhead and they didnt put a compression bandage on it.. well 45mins after surgery it swole so bad blood was squirting outta stitches and he was screaming in pain..meanwhile i was screamin at docs

Prayers sent

They ended up being able to intubate her normally instead of through the nose. She'll have to be intubated until the swelling goes down regardless of the MRI, because as long as there's swelling, her airway is in danger of closing. They're actively ting to manage he swelling, it's just slow going. I have no problem getting after a doctor or nurse I feel isn't getting it done (I got sideways with a few here when GomerJr was here his first time) but I on et that impression with these.

Stay on top of them Gomer.

Watch that damn night shift. I've had problems a couple of times where they didn't follow the same treatment guidelines, condition threshold, etc.

Praying for all of y'all. I'm glad that it isn't hopefully an autoimmune issue.

Hang in there

Prayers sent

It's absolutely amazing what a shower and a decent cup of coffee can do for one's mood after a long 24hrs.

Now that things have settled down a little I wanted to thank everyone for their prayers and well wishes. We've still got a few more days ahead of us but it seems that we at least have a pretty good idea what's going on and a plan to address it. Please continue to pray for Maddie and the doctors, as well as the Mrs and me. MrsGomer has been surprisingly calm through all of this, which has in turn really helped keep me relatively calm.