Better to have an established airway now than try and get one if things go south. I understand Jonah's concern the less amount of time on a Ventilator the better.

Damn bro. Hope all works out.

Continued prayers for healing and recovery

Man Gomer just catching up. Im really sorry to hear this. Thats got to be tough on the little girl. Prayers sent again

Been following this since you first posted, and will continue to pray for all involved.

We all keep praying for her and your entire family!
Hospital is tough on everone involved,
Gomer if you need a food run or a stroll
Through a local hunting shop to get away yell!!
Several of us work close by and can get away!

Prayers sent.

Just read this and hope everything turns out well, prayers sent

UPDATE: ENT came back yeaterday afternoon after finally being able to consult with Interventional Radiology and study the images together. I said they cannot drain the cysts the way ENT was hoping, so hat option has been ruled out. That leaves treating it with oral medication or surgery. ENT really REALLY doesn't want to do surgery bc surgery on the tongue is pretty invasve, even as surgeries go. So, at this time the plan is to treat with steroids and this other medication, the name if which I can't recall.

Her tongue is still swollen, though not as bad as this past weekend. They're hoping it will continue returning to normal so hat we can take her off the breathing tube and let her totally wake up (and go home). If the swelling doesn't go down pretty quickly, we would be looking at a temporary tracheaotomy to ensure she can breathe safely while waiting for the tongue to return to normal. Again, this would be a temporary measure but we REALLY don't want to have to go that route for obvious reasons.

So, please continue to pray for Maddie, and specifically that the swelling goes down significantly over the next few days so she can get back to life as usual.

More sent!

My heart goes out to you and your wife. Trust that God will guide the doctors and Maddie will have a full and quick recovery. Thoughts and prayers from the Browers.

Prayers for Maddie's complete healing.

prayin

Keeping Maddie and your family in my prayers.

Prayers continued Gomer.

Know you're in good hands. Also know that she's stronger than you too! Kids are so resilient.

Hope you are able to head home soon.

Childrens can be the best and most frustrating place. We have 2.5 year old triplets and they have combined spent more than 1.5 years in childrens. I have seen the good bad and the ugly of that place.

Their #1 weakness is communication between the massive amounts of drs and staff that rotate constantly. Communication between different departments break down frequently as well. If you ever feel like they are not listening or are not communicating or following the plan properly, ask for your social worker and request through the social worker that a conference be set up between each department to make sure everyone is hearing your concerns and on the same page. These are very common and there are conference rooms in the hallways of each floor for these very reasons. We have had several of these and even had to call CHAT team before. As long as you are respectful and direct these things can help.

As far as a "temporary" trach goes, i would ask a lot of details about that. While trachs/ stable airways are great, once they get a trach they are not quick to remove one. One of our children got a trach that was supposed to be for a very short time and she has now had one for over a year. They can be very limiting on who can watch your kids, where you can go etc.. They are not nearly as scary as they seem up front but i would question them with great detail on what they consider temporary and what could cause it to not become temporary. I would really question ENT hard on that.

I love 90% of the drs we have dealt with and the surgeons are top notch. We have been on every floor except the cancer floor and communication is always the weakness of childrens. If you have any questions of frustrations feel free to pm me. It is easy to lose your mind in that place. You have to take turns getting some time away and try to unwind.

Continuing to pray Gomer

Hope y'all home soon Brother

Prayers for your Little girl and your Family

gomer, this has to be one of the strangest situations i've ever heard of, and i've been through some strange ones. continued prayers, brother ...

dmc, that is some fine advice you have dispensed ...