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truck
by jhix3734. 04/19/24 10:50 AM
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Prayer request for my adopted son, Jacob**Updated with More Details**
#2068313
03/24/17 07:42 AM
03/24/17 07:42 AM
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Joined: Jul 2005
Posts: 19,087
Chelsea, AL
straycat
OP
Old Mossy Horns
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OP
Old Mossy Horns
Joined: Jul 2005
Posts: 19,087
Chelsea, AL
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Jacob, my 3 year old, has been recently diagnosed with a very rare syndrome. I can't list the name in case birth parents ever search and find this post...inherited disease.
Seeing some specialists today and over the next few weeks. Could really use some prayer. Thanks!
Mike.
**UPDATE DETAILS**
Here is the scoop. I have to be vague with the name of the syndrome because it is very rare and a search on the name might lead to Aldeer and to me. We want to keep our privacy from the birth parents.
A few months after we adopted Jacob in 2015 we received word from the birth mother via DHR that she had just been diagnosed with a very rare connective tissue disease. She wanted us to know in case he ever showed signs. She has a multitude of health issues that had been unexplained until she got her diagnosis.
We had genetics testing done at UAB and it was confirmed he does have the syndrome, just no issues form it at this time. So for now he is very healthy as far as we can tell. But there may be things going on so we have to get several baseline tests and studies done to see what's up.
The syndrome doesn't always manifest itself the same in every person. Can be severe or mild or a mixture. Common issues are early onset severe arthritis and joint issues along with scoliosis (teen years), retinal detachments, other eye issues, hearing loss, heart issues, and a few more less common symptoms. There is at this time no cure or even anything on the horizon. The joint and spine issues can be mild or very debilitating. Same with the rest of the problems. At this point we don't know what to expect until things start happening.
Today was his pediatric cardiology appointment: Praise God his heart is perfectly normal and fine. We can check that potential problem off the list.
Next is audiology for hearing loss, then rheumatology and orthopedics for bone/joint/connective tissue studies, then to eye doctor for a check, then to an endocrinologist for some other studies.
So...lots of questions to be answered. I can say with confidence that we will be alright no matter what because my God is capable to sustain us through anything. I know He loves Jacob and my only job is to make sure that Jacob gets the proper teaching and training in the Truth of the Gospel and to be the example lived out in front of him.
So if y'all could, remember my son who we have been blessed with since the first day he was placed with us as foster parents. He's awesome and I pray that he will not have to undergo any serious complications. Thank you.
Last edited by straycat; 03/24/17 11:07 AM.
"The grass withers, the flower fades, But the word of our God stands forever." Isaiah 40:8
"Neither the wisest constitution nor the wisest laws will secure the liberty and happiness of a people whose manners are universally corrupt.� Samuel Adams
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Re: Prayer request for my adopted son, Jacob
[Re: straycat]
#2068325
03/24/17 07:57 AM
03/24/17 07:57 AM
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Joined: Jan 2004
Posts: 31,681
Slidell, La
perchjerker
Freak of Nature
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Freak of Nature
Joined: Jan 2004
Posts: 31,681
Slidell, La
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So many here with ill kids. God Bless Stray. Prayers sent. Can you elaborate if he will have it for life or something kids grow out of?
Thomas Jefferson. The tree of liberty must be refreshed from time to time with the blood of patriots and tyrants.
Life is too short to only hunt and fish on weekends!
If being a dumbass was fatal some of you would be on your death bed!
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Re: Prayer request for my adopted son, Jacob
[Re: straycat]
#2068365
03/24/17 08:42 AM
03/24/17 08:42 AM
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Joined: Nov 2013
Posts: 5,050
Fayetteville, Tennessee
Bamabucks14
12 point
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12 point
Joined: Nov 2013
Posts: 5,050
Fayetteville, Tennessee
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Sent, I had a scare Tuesday when we had our first born. Changed my outlook on life as a whole. Pray he will be ok
"Here, take this land mine and protect your property with it."
-Ron Swanson
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Re: Prayer request for my adopted son, Jacob
[Re: straycat]
#2068477
03/24/17 11:07 AM
03/24/17 11:07 AM
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Joined: Jul 2005
Posts: 19,087
Chelsea, AL
straycat
OP
Old Mossy Horns
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OP
Old Mossy Horns
Joined: Jul 2005
Posts: 19,087
Chelsea, AL
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Update in original post. Thanks guys!
"The grass withers, the flower fades, But the word of our God stands forever." Isaiah 40:8
"Neither the wisest constitution nor the wisest laws will secure the liberty and happiness of a people whose manners are universally corrupt.� Samuel Adams
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Re: Prayer request for my adopted son, Jacob**Updated with More Details**
[Re: straycat]
#2068487
03/24/17 11:17 AM
03/24/17 11:17 AM
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Joined: Dec 2006
Posts: 16,953
Madison
BowtechDan
Old Mossy Horns
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Old Mossy Horns
Joined: Dec 2006
Posts: 16,953
Madison
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Thoughts are with your family straycat.
Nathan Carl Goff 19 Sept 2016 - 14 Jan 2017.
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Re: Prayer request for my adopted son, Jacob**Updated with More Details**
[Re: straycat]
#2068517
03/24/17 12:11 PM
03/24/17 12:11 PM
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Joined: Oct 2006
Posts: 2,095
Arab, AL
Andrew Morton
8 point
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8 point
Joined: Oct 2006
Posts: 2,095
Arab, AL
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God has blessed Jacob wonderfully to be a member of your family. May He continue to pour out His blessing on you all, and guide the physicians as they work with your son.
Middle aged, middle income, conservative, Southern, white male.
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Re: Prayer request for my adopted son, Jacob**Updated with More Details**
[Re: straycat]
#2068658
03/24/17 02:56 PM
03/24/17 02:56 PM
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Joined: Feb 2002
Posts: 44,211
North Alabama
Wiley Coyote
Freak of Nature
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Freak of Nature
Joined: Feb 2002
Posts: 44,211
North Alabama
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Praying for that baby to be healed of all disease and sickness. God Bless.
I firmly believe that a double gallows should be constructed on the East Lawn of The White House. Politicians who willfully and shamelessly violate their oath to uphold and defend the Constitution of the United States of America should be swiftly tried and, upon conviction, publicly hanged at sunup the day after conviction. If multiple convicts are to be hanged they can choose with whom to share the gallows or names shall be drawn from the hangman's hat to be hanged 2 at a time.
NRA Life Member
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Re: Prayer request for my adopted son, Jacob**Updated with More Details**
[Re: straycat]
#2068772
03/24/17 04:07 PM
03/24/17 04:07 PM
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Joined: Jan 2011
Posts: 9,861
Mobile, AL
alhawk
14 point
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14 point
Joined: Jan 2011
Posts: 9,861
Mobile, AL
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Re: Prayer request for my adopted son, Jacob**Updated with More Details**
[Re: straycat]
#2068774
03/24/17 04:12 PM
03/24/17 04:12 PM
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Joined: Sep 2011
Posts: 7,404
Tenn
woodduck
14 point
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14 point
Joined: Sep 2011
Posts: 7,404
Tenn
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